Wow Larry, that must be almost unimaginable, cripling pain.

Did you have pain meds to help lessen the intensity of the pain or other meds?

Did they just disappear?

For others:

https://en.wikipedia.org/wiki/Cluster_headache

Cluster headache (CH) is a neurological disorder characterized by recurrent severe headaches on one side of the head, typically around the eye(s).^[1] There is often accompanying eye watering, nasal congestion, or swelling around the eye on the affected side.^[1] These symptoms typically last 15 minutes to 3 hours.^[2] Attacks often occur in clusters which typically last for weeks or months and occasionally more than a year.^[2]

The cause is unknown.^[2] Risk factors include a history of exposure to tobacco smoke and a family history of the condition.^[2] Exposures which may trigger attacks include alcohol, nitroglycerin, and histamine.^[2] They are a primary headache disorder of the trigeminal autonomic cephalalgias type.^[2] Diagnosis is based on symptoms.^[2]

Recommended management includes lifestyle adaptations such as avoiding potential triggers.^[2] Treatments for acute attacks include oxygen or a fast-acting triptan.^[2][4] Measures recommended to decrease the frequency of attacks include steroid injections, civamide, or verapamil.^[4][6]Nerve stimulation or surgery may occasionally be used if other measures are not effective.^[2]

The condition affects about 0.1% of the general population at some point in their life and 0.05% in any given year.^[5] The condition usually first occurs between 20 and 40 years of age.^[2] Men are affected about four times more often than women.^[5] Cluster headaches are named for the occurrence of groups of headache attacks (clusters).^[1] They have also been referred to as "suicide headaches".^[2]

HI Larry

Your symptoms mirror my experience

My head aches started mid 20 yrs old

One thing I found out was an allergy  to alcohol developed at approx 30 yrs of age and continues to this day

Since mid 20's I averaged  one attack/yr. They followed mostly same as your experience. The term suicide head ache is no joke, although I would tell myself, eventually this will pass, which saved me many times

Pain medication is mostly useless

Narcotics was about the only pain killer I had which usually meant a trip to emerg

Then I had it at home but told nobody as I did not want to be a target for theft

Today my pain specialist is better than a hospital. A hospital has to abide by rules etc

My pain specialist can exceed the bounds of ordinary rules with special licence from a hospital

Because my head aches came so regular, it complicated my ability to apply for many jobs. That is why trucking allowed some measure of freedom, so long as I made the dead line. I even had a fellow team driver drive my truck while I was in the bunk with a head ache. Truckers live in a different world, at least when I was in the business.

Today when my head ache peaks for a few weeks I get a needle applied in my skull, some place in back of my head and another shot at the same time with same medication, just over my right eye brow, There is a big eye socket on a skull so how they hit the skull is a mystery to me

Same as Larry, pain would be on my right side. Stand up is better than laying down, light and sound is terrible. Talking is an effort, with visible effort to just say one word. Avoid at all cost some of these things

I use oxygen until I need the needle in the skull

I think I am just past my head ache for today, although the head is still a bit tender. Used oxygen about three times to get rid of it. Started about 5 P.M.

When you know another head ache is coming in 24 hrs it sort of messes with your thinking and suicide thoughts come about that time and during the head ache is worse thoughts

Mike said:

“Wow Larry, that must be almost unimaginable, cripling pain.

Did you have pain meds to help lessen the intensity of the pain or other meds?

Did they just disappear?”

———————————-

Mike,

 Pain meds like Tylenol and Advil did absolutely nothing though I don’t recall ever being prescribed strong pain pills like oxycodone. I had ~8 different clusters. I documented them with detail (date, times, severity, other symptoms, etc) because of the distinct pattern to help me predict both the progress of the then current cluster as well as future clusters. The 1.5 or so month long clusters tended to be more frequent in spring but I think I had at least part of one during the other seasons. I know I had a full one during autumn.

  Whereas I wasn’t given pain pills per se, they tried after a cluster got going different treatments including verapamil, caffeine suppositories, inderol, and oxygen. Unfortunately, they never could find anything that worked well. Even if I took whatever during the very early stage of a CH, there usually was little or no relief. So, essentially, the only cure for each headache was time! Once I got one, I knew with near certainty that I’d feel much better within an hour. I counted down the minutes as I waited. And then when each would go away, just the absence of pain was an amazingly great feeling!!

 During the middle few weeks, it was a near certainty that recovering from one was unfortunately not the end of pain on that day since I normally had several a day. They tended to be worse in the morning and often woke me from a deep sleep. Sleeping with the bad ones was impossible.

 Just as time was the cure for each CH, it also was the cure for a cluster as a whole. I knew that   2 months after the start of one, I knew that I’d likely be past that cluster and that it would be 1-4 years before the next one. Life was so good just after a cluster ended!

 So, these clusters went on for ~17 years. Based on my documenting the clusters, I noticed that each time I noted that I had had cold-like symptoms that preceded the start of each cluster. Just before my 1998 cluster, I definitely took Claritin for these symptoms a week or less before the cluster started. By 1998, the WWW had already gotten going. So, I started researching CHs and discovered that CHs along with symptoms of eye tearing and nose running were associated with a histamine reaction. So, I put two and two together and came up with a hypothesis. If I was having cold like symptoms prior to each cluster, that meant I very likely was taking antihistamines to treat these symptoms before the prior clusters also. Since CHs involve histamine reactions, I asked myself: is it possible that antihistamines somehow caused some kind of rebound reaction that triggered the start of each cluster??? At that point, I decided I would try to avoid ever again taking any antihistamine. I’d just endure the running nose/sneezing.

 Well, the last time I took an antihistamine was that time just before my 1998 cluster. I have not had another cluster since!!! Does this mean with certainty that antihistamines turned out to be the trigger for my clusters? I’ll likely never know for sure, but I intend to never, ever take another one. I’ve gone 24 years without taking them and haven’t had a cluster in 24 years after having had about 8 over the prior 17 years.

 That’s why I posed the question: have any CH sufferers here taken antihistamines?

 Edit: I just read Wayne’s reply after typing this. I’ll have more to say about that by hopefully tomorrow. In the meantime, Wayne, do you ever take antihistamines?

wx

No antyhistamines [sp]

Same as you

Last nite I had three attacks in 7 hrs. starting at approx 5 P.M. I am still sort of on the verge today

Right eye, runny nose [gross] tears, loss of vision due to tears, light, sound, talking. I was in a motel room one time and my wife was eating McDonalds french frys clear across the room. I asked her to go out in the hall way as the crunching sound of the French Fry hurt my head. That is some idea how sensitive you are to some things.

Oxygen works until it doesn't

Then it is the needle in the skull but not until the oxygen stops working. You can use all your defenses to soon and then get re-bound head aches

I had a blood count of 96 % oxygen [if that is the proper medical term. All I heard was them saying he has a 96 blood some thing] and still oxygen helped

My wife was in another medical centre and the oxygen was across town and about to close the door, for the week end if I did not get there soon enough

That was also the snow day but 4 x 4 saved me a lot, plus I was cautious. Lots of horns beeping as I drove slowly.

O2 levels of oxygen at 96 are excellent for a person your age, so they must have been referring to something else Wayne.

My wife has a serious breathing disorder and we have a pulsox meter for the bedroom and the living room.

What Is a Good Oxygen Rate by Age?

https://www.emedicinehealth.com/what_is_a_good_oxygen_rate_by_age/article_em.htm

Normal oxygen saturation levels (SpO2) are between 95 to 100 percent for both adults and children.

However, older adults usually have slightly lower oxygen saturation levels than younger adults and children. People over 70 years of age may have oxygen levels closer to 95%, which can be normal for that age group,

Wayne,

Based on my own experiences, I feel for you, bro. But that’s good that O2 and especially the needles/shots can help. How long have you been in your current cluster and how long does an average cluster last? Does your pulse slow down during the worst ones?

Sorry wx

MM has banned me

Thus I cannot reply

Wayne said,

“Sorry wx

MM has banned me

Thus I cannot reply”

——————-

Wayne,

 But if he did, how were you able to post what you just posted? I’m confused.

Actually I am a bit confused also

But I am positive some place back there MM decided to ban me for the month of Feb

So even though I can post 

As a good Canadian

We mostly go along to get along

For any more information

You will have to ask MM

Or:

Perhaps somebody else can help me sort this out

Today the oxygen has mostly kept the head aches down to a dull roar, which is some what of a relief

Larry/Wayne,

Since Wayne has refused to use the normal channels to communicate(banned me from using the email he gave us-you and I have communicated by email several times over the years) and won't give me another one or use the moderator contact button or give me a phone #)

I'm allowing some posts thru(even though Wayne is suspended), in hopes that he'll at least use this form of communicating to agree to follow the forum rules.

I know that it seems odd but this is entirely about helping Wayne.

Wayne, you can have your full privileges restored and pay no penalties for previous infractions.

You just have to agree to follow our rules.

Nobody is censoring your posts or sources(I've never done that-exposed them-yes-but not censored them)

..........I even helped you and posted the link to your articles from Zero Hedge since you need some help with your posting skills at times-that I'm happy to provide....including this one:

https://www.marketforum.com/forum/topic/81076/#81085

But it's absolutely  not negotiable that you cannot make personal attacks and use name calling to anybody, including the moderator at any time.

I also learned from Gunter not to enable posters that get ticked off because I expose their sources and declare a posting war on our objective/me. 

It's fine if you want to post from Zero Hedge or any other place. I'll even help you, like I did above but if your objective is clearly just to post as many stories from that source/sources to spite the moderator and/or to fight/obstruct the objectives here, that is wrong too.

You are not a skilled cut and paste artist like Gunter but this is a tiny example of how he reacted (with hundreds of DISinformation posts) to me asking him to cool it on DISinformation posts............he went bonkers doing the 100% opposite to try to turn this site into his propaganda tool and use his far right comrades to cheer him on. Gunter thought that he was proving one thing with this post...........and it proved the entirely opposite thing. He became pathologically obsessed with proving he was right and it became extremely unhealthy for him to post this way at MarketForum............just like it would be for you to have this frame of mind, Wayne.

I'm not telling anybody how to post or what to post but if your posting is  obviously indicating that you've declared war on the altruistic objectives at this site............the moderator is not stupid..........errrr, not as stupid as before gunter did it. 

                negative vaxx comments            

                            Started by GunterK - Aug. 7, 2021, 3:43 p.m.            

https://www.marketforum.com/forum/topic/73302/

All you posting before last weekend was wonderful Wayne.

Then you got ticked off at the moderator because of information that YOU asked for(you wanted to know what was wrong with Zero Hedge and I showed you) because you didn't like the answer.

Then, you called me unacceptable names and declared a posting war and refused to have any communication and totally misled on an email that I sent with good intentions.........describing me as a stalker causing your wife to fear for her life. This type of behavior is never going to be allowed here.

Agree with that rule...........and we're good immediately Wayne. I take nothing personally and just want whats best for you Wayne.

I'm fearful that if you're still in a foul mood, that this post will somehow set you off...........but at least I tried numerous times to help you. 

You've been a wonderful person and generous contributor in the past, so I'm hoping that the real Wayne can return soon. 

Wayne,

You must still not be understanding the messages.

You were suspended and are still suspended but I'm letting some of your messages thru in hopes that you'll agree to follow our rules here in one of them.

Which is why I let the posts  thru on this thread

Starting more threads advertising Zero Hedge, like you just did instead of taking the advice of what seems pretty  crystal clear is NOT going to restore your privileges.

Your last attempt to start a new thread about Zero Hedge a short while ago was deleted.

At some point, even though I keep telling myself....."metmike, just give Wayne another chance and he'll finally come to his senses"........ I'll  finally come to my senses and realize that you have no intention of following MarketForum rules.

Sorry WX

This seems to be the only avenue to the forum

Hope you don't mind my using your thread

Mike  Question????

Are you the goal keeper and allow  some articles to score  and some are disallowed

I posted an article from Zero Hedge which I don't know how much is true  and how much  may be fake news

I posted what I could and  asked for other thoughts

This is all from memory and may not be correct but [I think most of what I said is true, about my previous post]

Now you came along, as our fearless leader, and tell us which sources we may use on Market Forum and which sources are not allowed. This was a serious article and the citizens who donated money, deserved to know what was happening

Until you come along and censor my post

Now we have one less voice asking questions about 10 million CAD

Why??

This is news that the people deserve to  know about

When the truth is censored, or even a tiny part of the truth, what have we become?? Don't we deserve a chance to decide for ourselves or are you the guardian censor who knows what we should read

 Really????

Are you gonna let the formites see this or are you going to punish me by wiping this off the board, and censor information that people deserve to know about

Your not punishing me

You are acting as the censor of what news is allowed

I don't know what Gunter did or posted

But you can be assured I post what I think is the truth

You are the one who censors

You are the one who decides what news the forum receives

Be it truthful seems to not matter to you

You have decided to censor information from one source

What about the next source

Will you censor news from that source

I feel sorry for you MM

You have set yourself up as the guardian of what we read  and censor what you don't think we should  read

You are acting no differently than FB or other platforms that censor what they don't want us common people to know about

Think about what you are doing Mike

Think really hard about censorship and the damage it does to ordinary citizens

I would really prefer to  take my argument to the forum but I know you would censor any thought of debate

What is your problem Mike

Seriously:  I want to help you

Are you afraid of your own forum??? and thus have to censor

Wayne has made his choice.

I tried.........then tried and tried some more but he decided from the get go that he is above following any rules here.

Wayne, we can all see what far right  DISinformation and propaganda and hate capturing your brain has done to your personality/frame of mind.

You're not the same Wayne that used to post here. 

I'll leave your posting privileges open so that if you decide to be like everybody else..........following rules and respecting others here(and I will delete any other posts that don't send that message that you agree or that are related to an ongoing discussion about it).

I strongly suggest that you use the contact moderator button and provide a usable email for a private discussion, so you don't have this mentality of being Wayne the warrior that's fighting censorship with his adoring supporters as spectators cheering him on.

Which is also why you made up the story of me stalking you and causing your wife to fear for her life but have sent numerous posts here since then(many I deleted because you're banned) after your wife told you to never go here again because she fears for your lives, supposedly because of me.

Really Wayne, that by itself is about the most extreme contrived personal attack directed at somebody here that I can remember and was repeated numerous times by you.....another clear violation of rules at MarketForum.